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Day 1 - Thursday, 15.09.2022

Hörsaal G3

 

11:00 – 12:30​​​   

Registration

​​​​

12:00 - 12:30

Quick Lunch​ - Foyer D Nord 

12:30 – 12:40​ ​​ 

Welcome and Opening Remarks

​Jörg Goldhahn (ETH Zürich

Head of Institute of Translational Medicine

 

12:40 – 12:50​   

Remote Digital Monitoring for Medical
Product Development Workshop, 02/2020

Steve Hoffmann (FNIH) 

​Associate Vice President, Research Partnerships

12:50 – 12:55​   

Workshop Introduction and Charge

​Ieuan Clay (VivoSense) 

​Director, Science

Qualification of New Digital Evidence

13:00 – 16:30​   

Use Case 1: Mobilize-D 

Connecting digital mobility assessment to clinical outcomes for regulatory and clinical endorsement

13:00 – 13:10​   

Overview & Challenges

Arne Müller (Novartis)

Senior Principal Data Scientist in Clinical Digital Endpoints 

        

13:10 – 13:35​ 

Patient Involvement & Monitoring Strategy  

Allison Keough (Trinity College, Dublin)

Assistant Professor of Healthcare Innovation

 

13:35 – 13:50​   

Parkinson’s Disease Testimonial and Mobility

Tova Gur Arieh (Nitzan)

Director of Resource Development & International Relations

 

13:50 – 14:15​   

Clinical validation of Digital Mobility Outcomes

Clemens Becker (Robert Bosch Hospital, Stuttgart, Germany)

Head of Clinical Gerontology and Rehabilitation

 

14:15 – 14:40​

Technical Validation (sensor, algorithms & app)

Andrea Cereatti 

Full Professor in Biomedical engineering at the Polytechnic University of Turin.

14:40 – 15:10​

Coffee Break - Foyer D Nord

 

15:10 – 15:35​

Regulatory Strategy and Achievements

Wim Dartee (Novartis)

Global Lead Combination Products and Medical Devices

 

15:35 – 16:30​

Moderated Panel Discussion,

Q&A  

Moderator: Arne Müller

 

16:30 – 17:00​

Apéro - Foyer D Nord

17:00 – 20:30​   

Use Case 2: IDEA-FAST  

Identifying digital endpoints to assess fatigue, sleep and activities in daily living in neurodegenerative disorders and immune-mediated inflammatory diseases

17:00 – 17:10​

Overview & Challenges

Fai Ng (Newcastle University)

Professor of Rheumatology

 

17:10 – 17:30​

The Patient Voice Patient Recorded Videos

 

17:30 – 17:50​

The Clinical Perspective

Fai Ng (Newcastle University)

Professor of Rheumatology

 

17:50 – 18:00​

Discussion, Q&A

Moderator: Lada Leyens

18:00 – 18:20​

Technology Specialist

Christopher Bull (Newcastle University)

Lecturer, Digital Health and Software Engineering

Francesca Cormack (Cambridge Cognition)

Chief Scientist

 

18:20 – 18:40​

Regulatory Challenges

Wojtek Piwko (Takeda)

Associate Director, EUCAN Regulatory Lead

David Nobbs (Roche)

Digital Biomarker Disease Area Lead

 

18:40 – 19:20​

Apéro - Foyer D Nord

 

19:20 – 19:45​

Moderated Panel Discussion

Moderator: Lada Leyens

 

19:45 – 20:30​

Discussion, Q&A

Attendees

 

20:30 – 21:30​

Apéro riche (Buffet) - Foyer D Nord

Click on the underlined links to view the recordings

Day 2 - Friday, 16.09.2022​

Hörsaal F30

 

11:00 – 12:30​​​

Registration

​​​​

12:00 – 12:30​ ​​

Quick Lunch​ - Foyer D Nord 

12:30 – 12:35​​​

Day 1 Recap and Day 2 Overview

Ieuan Clay (VivoSense)

​Director, Science

 

12:35 – 13:00​

Reverse Translation: A Patient Testimonial

to Utility and Application

​Elena Izmailova (Koneksa Health) 

Chief Science Officer

 

From Efficacy to Effectiveness

 

13:00 – 16:30​

Use Case 3: Roche DHTs for SMA

Digital Health Technologies to better measure outcomes in Spinal Muscular Atrophy

 

13:00 – 13:10​

Overview & Challenges

Foteini Orfaniotou (Roche)

Group Leader Digital Health

 

13:10 – 13:35​

Novel digital outcome measures and validation frameworks, including regulatory and access considerations

Thanneer Malai Perumal (Roche)

Digital Biomarker Science & Technology Lead

Lada Leyens (Roche)

Regulatory Senior Director

Julian Nam (Roche)

Access Strategy Lead

 

13:35 – 13:55​

Patient Perspective 

Nicole Gusset (SMA Europe, SMA Schweiz,

Swiss Neuromuscular Diseases Association)

Patient expert

 

13:55 – 14:10​

HCP Perspective: neurologist

David Jacquier (University Hospital, Lausanne)

Neurologist

 

14:10 – 14:25​

HCP Perspective: physiotherapist

Tina Duong (Stanford University)

Physical Therapist, Director, Clinical Outcomes

Research & Development

 

14:25 – 14:40​

HTA and payer Perspective

Holger Bless (fbeta GmbH)

Partner, Head, Healthcare Research & Mkt Access,

Head of Digital Health

 

14:40 – 15:10​

Coffee Break - Foyer D Nord

 

15:10 – 15:50​

Moderated Panel discussion

Moderator: Ieuan Clay (VivoSense),

Panelists, Speakers

Steve Xu (Sibel Health) CEO

 

15:50 – 16:30​

Moderated Q&A with audience  

Moderator: Ieuan Clay (VivoSense)

 

16:30 – 19:15​

Use Case 4: AMP® SCZ Program

The Accelerating Medicines Partnership® Program

– Schizophrenia 

 

16:30 – 16:45​

Patient Engagement and Challenges

Carlos Larrauri (NAMI)

NAMI Board Member, Patient, Advocate

 

16:45 -17:25

Translating Research into Clinical Design

Justin Baker (McLean Institute for Technology in Psychiatry)

Scientific Director

John Torous (Beth Israel Deaconess Medical Center)

Assistant Professor of Psychiatry

17:25 - 17:55 

Apéro - Foyer D Nord

17:55 -18:15

Ethical & Legal Hurdles 

Francis Shen (Univ. of Minn. School of Law)

Professor of Law

18:15 - 18:35 

Implementation in the Clinic

Erlend Lane (Beth Israel Deaconess Medical Center)

Clinical Research Assistant

18:35 - 18:55 

Lived Experience Perspective

Cecilia McGough (students with Psychosis)

Executive Director

18:55 - 19:15 

Moderated Panel Discussion

+ Q & A 

Moderator: Justin Baker

19:15 - 19:45 

Apéro - Foyer D Nord 

19:45 - 20:45 

Fireside Chat 

Moderator: Steve Bourke

Effy Vayena

Kate Lyden

Katarzyna Wac

Luca Foschini 

20:45 - 21:00 

Concluding Remarks

Steve Hoffman (FNIH)

Associate Vice President, Research Partnerships

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